What to know
Living with the complications of thalassemia can be challenging. However, with treatment, people with thalassemia can manage their symptoms. Read these personal stories from people living with thalassemia.
Personal stories
Read how treatment advances have helped Aaron to better manage thalassemia and pursue his dreams.
Read about Amy's challenges living with thalassemia and how she was able to manage them.
Personal Story: Chanapa Tantibanchachai
Read about how Chanapa's diagnosis came as a surprise and how it affected her and her family.
Read how Eashani has been able to turn the challenges of living with thalassemia into opportunities.
Read how thalassemia influenced Janelle's career choice and goals of improving treatment adherence.
John's life has had many ups and downs, but he's still moving forward. Read his story of resilience.
Personal Story: Laurice Levine
Read how Laurice used to see thalassemia as a weakness; now, she sees it as a strength.
Navdeep thought thalassemia would limit him, but he has a full and rewarding life. Read his story.
Personal Story: Noor Altahafee
Living in Iraq made it hard for Noor to obtain quality thalassemia care. Read how she is doing now.
Radhika doesn't let thalassemia define her or stop her from living a full life. Read her story.
Read how living with thalassemia has inspired Rahul to help others facing tough medical challenges.
Personal Story: Robert Mannino
Read Robert's thalassemia story including what led him to pursue a biomedical engineering degree.
Personal Story: Tracy Antonelli
Tracy and her three daughters have thalassemia. Read how appropriate care has helped them thrive.
Read what it was like for Yasmeen growing up and how having thalassemia has guided her life choices.